Diane Kennedy, an RRMM caregiver advocate, explains how families can participate in shared decision-making with their care team.
Transcript
It is so important to get educated, and you can do that in patient-friendly ways.
Nonprofit organizations — going on their websites. My husband’s eight years in since he was diagnosed, and we are still on those websites frequently so that we stay up to date on the latest research.
And there are amazing patient-friendly resources out there that can help you do that so that you can be involved in shared decision-making.
We write everything down, we write our questions down for the doctor in advance. Even now, we’re eight years out since diagnosis, and we still come in with questions that are written down because we’re prepared. We want to make the most of our time with the doctor.