When it comes to medical jargon, where’s my secret decoder ring?
I see a lot of jargon in my line of work. A big part of my job is helping reporters translate it into something our…
Myeloma
Learning to reframe the stories we tell ourselves as caregivers
As a caregiver to my mum, who has myeloma, I usually experience some moments of quietness. One of these moments might be when we’re…
Myeloma treatment HDP-101 put on FDA fast track
The U.S. Food and Drug Administration (FDA) has granted fast track designation to HDP-101 (pamlectabart tismanitin), a multiple myeloma therapy currently in early clinical…
Navigating a myeloma diagnosis in the land of ‘I don’t know’
I am a longtime journalist with a firm belief that knowledge is power. My life’s work has been to answer the who, what, where, when,…
FDA approves Blenrep for relapsed or refractory multiple myeloma
The U.S. Food and Drug Administration (FDA) has approved GSK‘s Blenrep (belantamab mafodotin) for adults with relapsed or refractory multiple myeloma. The approval…
How to offer caregivers help that actually helps
“Let me know if you need anything.” No matter how well-intentioned that statement sounds, I personally believe it’s the most useless thing someone can say…
Tecvayli-Darzalex Faspro combo extends survival in myeloma trial
People with hard-to-treat myeloma given a combination of Tecvayli (teclistamab) and Darzalex Faspro (daratumumab and hyaluronidase-fihj) — both approved cancer therapies from…
When self-care feels like another thing on the to-do list
My therapist advised me to engage in more meditation. A friend sent me a link to a YouTube channel dedicated to yoga. In the waiting…
Results expected soon on burixafor for myeloma stem cell transplants
Results from a clinical trial testing Exicure‘s therapy candidate burixafor (GPC-100) in stem cell transplants for people with myeloma are expected soon — and the developer…
Feeling relieved, then guilty, when my mum falls asleep
The most peaceful part of my day starts around 10:36 p.m. That’s when my mother has taken her last pills, I’ve checked her vitals, and…
